I am wondering from a personal perspective if there are ant stories of things that arnt really tested even or miricales of people being found to have a greater quality of life or improvements that may have even been discounted. I know all about the "no cure" status and the drug that helps a bit I cant remember its name and I know a lot about the disease also……etc. My grandmother had it.
thanks starligh I was thinking about what you said about stephn hawkns also although he i believe has a type I believe that can lead to a longer survival rate
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Unfortunately, there have really been no developments in treatment for it. The disease itself is still not fully understood, and attempts to make improvements through drugs, etc. have largely failed. I’m sure if there were truly any treatment at all that would help, Stephen Hawking would have tried it by now.